Provisional Programme

                                                XXXI International Conference

The Pontifical Council for Health Care Workers

(for Health Pastoral Care)

Vatican City, 10-12 November 2016

Towards a Culture of Health that is Welcoming and Supportive at the Service of People with Rare and Neglected Pathologies

Informing in order to know;

Knowing in order to act;

Acting in order to treat;

Treating in a way that respects the life and the dignity of the patient and the environment,

A culture of health that is welcoming and supportive,

With an outlook of hope on the future.

 FIRST DAY

Thursday 10 November 2016

Item 1 on the Agenda

OPENING CEREMONY

(9.00-11.30)   The General Chairman of the International Conference

 Msgr. Jean-Marie Mupendawatu

                         Secretary of the Pontifical Council for Health Care Workers

(Holy See)

9.00-9.05        Prayer and a minute’s silence for H.E. Msgr. Zygmunt Zimowski

9.05-9.15        Words of Greeting

His Eminence Cardinal Peter Kodwo Appiah Turkson

                          Prefect of the Dicastery for Promoting Integral Human Development

                        (Holy See)

9.15-9:45        Greetings of Authorities and Personalities

His Eminence Cardinal Francesco Montenegro

The Metropolitan Archbishop of Agrigento and President of the Episcopal

                          Commission for Charity and Health

                        (Italy)

The Hon. Beatrice Lorenzin

Minister of Health

                        (Italy)

H.E. Msgr. Ducange Sylvain SDB

The Auxiliary Bishop of the Archdiocese of Port-au-Prince and member of the

Governing Board of the ‘Good Samaritan’ Foundation      

Dr. Anthony Tersigni

The President of the Governing Board of the International Committee of Catholic

                          Health-care Institutions – C.I.I.S.A.C.

                        (USA)

Dr. Fabrizio Pulvirenti

An Italian Medical Doctor who had Ebola but Recovered 

(Italy)

A Person with a Rare Pathology

                    (Sabin Vaccine Institute)

Dr. Augustine Mutsunga

A Congolese medical doctor with a study grant from the ‘Good Samaritan’                                    Foundation

                       specialising at the Catholic University of the Martyrs of Uganda, Kampala

                         (The Democratic Republic of the Congo)

9.45-10.15      PROLUSION: Dr. Peter Hotez

President of the Sabine Vaccine Institute      

(USA)

10.15-10.55    PROLUSION: Prof. Riccardo Cortese

                    Founder of the Research Institute of Molecular Biology (IRBM) and Chief Executive of

the Biopharmaceutical Society OKAIROS

(Italy)

10.55-11.10    OFFICIAL OPENING OF THE XXXI INTERNATIONAL CONFERENCE

His Eminence Cardinal Pietro Parolin

Secretary of State of His Holiness

(Holy See)

11.10-11.40    Family Photograph – Visit to an Exhibition – Break

11.40-11.45    Video summarising the programme of the XXXI International Conference

11.45-13.00    Dialogue between a journalist, a social worker and a health-care worker with a family

that has a member suffering from a rare pathology

(Sabin Vaccine Institute)

13.00               End of the Session

Item 2 on the Agenda

THE STATE OF THE QUESTION – WHAT CAN WE KNOW AND DO?

 In two different halls, contemporaneously and with the same methodology, two sessions of in-depth analysis will be held on the two typologies of pathologies chosen for study. The first part of the session will be from 14.30 to 16.00 and the second part from 17.00 to 18.40.

14.30-16.00 

RARE PATHOLOGIES First Session NEGLECTED PATHOLOGIES
     
Prof. Andrea Piccioli Chair Director
Director of Oncological Orthopaedics   WHO/America
Umberto I – Rome    
     
Dr. Domenica Taruscio First Speaker Functionary WHO/Africa
Director of the Centre for Rare Diseases 20m Brazzaville
  Epidemiology Republic of the Congo
Advanced Institute of Health Care and  
  Health-care policies  
     
     
Australia Second Speaker The Catholic University
  20m              of Medicine, Tanzania,
  Prevention, the Bugando Medical Centre
  Treatment  
  and  
  Research  
     
Alcaptonuria Two Short Contributions Ebola (DRC)
 Dr. Helena Glasova  Slovakia    
Canada 30m Zika (Brazil)
     
     
Dr. Marco Tartaglia

Baby Jesus Hospital

Discussant India
  20m  

16.40-17.00    Break

17.00-18.40

 RARE PATHOLOGIES Second Session NEGLECTED PATHOLOGIES
     
Prof. Fabrizio Soccorsi Chair 10m? Prof. Paul D’Arbela
Personal Physician of   Professor of Medicine and Cardiology
the Holy Father    
     
10 Principal Rare Pathologies Speaker 10 Neglected Tropical Diseases

Africae Munus

USA 20m Mozambico
     
Prof. Vincent Han-Sun 2 Speakers Fra’ Florent
President of the FU JEN Short contributions on the current situations of both typologies Buruli Ulcer 15m
Catholic University in Taiwan 15m    
Don Santiago de la Riva 15m   Leprosy 15m
Board Member of the Spanish   Minister of Health
Federation on Rare Diseases – FEDER   The Hon. Nila Farid Moeloek (Indonesia)
(Spain)   or ambassador
    Bahar Budiarman (Indonesia)
     
     
Dr. Marco Tartaglia

Baby Jesus Hospital

Discussant India
  40m  

18.40-19.00    One of the two discussants summarises and ends the discussions of the two sessions

SECOND DAY

Friday 11 November 2016

Item 3 on the Agenda

 ROUND TABLE

SOCIO-POLITICAL, ECONOMIC AND JURIDICAL-ETHICAL ASPECTS FROM THE POINT OF VIEW OF RESPECT FOR THE LIVES, THE DIGNITY AND THE RIGHTS OF PATIENTS AND THE COMMITMENT TO BE WELCOMING AND SUPPORTIVE

(9.00-10.40)    Chair:

Margaret Scotford Archer

The President of the Pontifical Academy of Social Sciences

                        (United Kingdom)

The Human, Social, Political and Economic Problems of People with Rare Pathologies

The Hon. Konstanty Radziwiłł (20m)

Minister of Health

(Poland)

Legislation and Ethics to Protect the Lives, the Dignity and the Rights of Patients, and the Responsibilities of Institutions

H.E. Msgr. Vincenzo Paglia (20m)

The President of the Pontifical Academy for Life

(Holy See)

 The Role of Associations of Sick People, Families and Socio/Health-Care and Pastoral Workers

H.E. Msgr. Nunzio Galantino (20m)

General Secretary of the Italian Bishops’ Conference – C.E.I.

(Italy)

 The Role of the Church and Faith Communities in the Recent Ebola Epidemic in Africa

 (a Brother of St. John of God) (20m)

 USAID’s Commitment to the Fight against Neglected Tropical Diseases (20m)

10.40-11.00    Break

11.00-12.20    Dialogue

Discussant: Prof. Jacques Simporè MI

Professor of Genetics and Molecular Biology at the University of Ouagadougou and

Rector of the University of Thomas Aquinas.

Director of the Centre for Biomolecular Research CERBA/LABIOGENE

(Burkina Faso)

 Item 4 on the Agenda

THE QUESTION OF MEDICAL PRODUCTS AND ACCESS TO TREATMENT

(12.20-13.00) Chair: Prof. Maria Paola Costi

                    Department of Life Sciences, the University of Modena and Reggio Emilia

(Italy)

Access to Medicines for the treatment of neglected tropical diseases  

          Dr. David Reddy

          CEO Medicines for Malaria Venture – M.M.V.

(Switzerland)

Progress towards the IRDiRC Goals: 200 New Treatments for Rare Diseases by 2020.

Dr. Paul Lasko

Chair, International Rare Disease Research Consortium (IRDiRC), Scientific Director of the Institute of Genetics, Canadian Institutes of Health Research

(Canada)

13.00   End of Session

(14.30-14.50)  Discussant: Dr. Gaspare Guglielmi

Head of the Area of Biotechnologies of the Italian Society of Hospital Pharmacists –

                          S.I.F.O

                    (Italy)              

                    Prof. Mario Melazzini

The President of the Governing Board of the Italian Agency for Medical Products

                          (AIFA)

(Italy)

14.50-16.00    Dialogue

16.00-16.20    Break

 Item 5 on the Agenda

CARE THAT RESPECTS PATIENTS AND THE ENVIRONMENT: A BRIEF RE-READING OF THE ENCYCLICAL

LAUDATO SI’

16.20-16.30    Paper by Dr. Antonio Maria Pasciuto Introducing the Dialogue and the Discussion

16.30-17.00    Discussion Chaired by Dr. Antonio Maria Pasciuto

                    Specialist Medical Doctor in Environmental Medicine

                        (Italy)

                   

Item 6 on the agenda

GOOD PRACTICES

17.00-19.00    Chair: Fr. Leocir Pessini   Introduces the Session with a Paper (Thoughts) on

Welcoming and Supportive Pastoral Care (10m)

The Superior General of the Camillians

                        (Brazil)

  • Roch Christian Johnson– Buruli Ulcer

Maître-Assistant des Universités (CAMES) CIFRED- Université d’Abomey-Calavi

            Conseiller Médical Fondation Raoul Follereau (15M)

(Benin)

  • Yohei Sasakawa

The President of the Nippon Foundation

Good Will Ambassador of the WHO for the Elimination of Leprosy; Good Will Ambassador of the Japanese Government for the Human Rights of People with Leprosy (15m)

(Japan)

  • Babar Qureshi

Director of the Programme of the CBM for Neglected Tropical Diseases – SAFE Strategy to Defeat Trachoma in North Ethiopia

CBM/Italy (Project Ethiopia) (15m)

  • Mario C. Raviglione

Director of the ‘Global Tuberculosis Programme’ (GTB)

The World Health Organisation

Department of TBC/WHO Geneva (15m)

  • UNITAID (15m)
  • Nicola Spinelli Casacchia

The President of the Italian Federation of Rare Diseases Uniamo FIMR Onlus (15m)

(Italy)

Dialogue (30m)

Discussant: Dr. Mario Angi

Ophthalmologist at the University of Padua and President of the NGO CBM

                                (Italy)

THIRD DAY

Saturday 12 November 2016

Item 7 on the Agenda

AN OUTLOOK OF HOPE ON THE FUTURE: REASONS, CONCLUSIONS AND RECOMMENDATIONS

9.00-09.20      The Reasons for Hoping in a Better Future (20m)

Prof. Giuseppe Novelli

Rector of the ‘Tor Vergata’ University of Rome

(Italy)

9.20-10.00      Conclusions and Recommendations

                    Prof. Fr. Michele Aramini

Lecturer in Theology at the Catholic University of the Sacred Heart – Milan

                        (Italy)

 10.00-10.30    General Chairman Msgr. Jean-Marie Mupendawatu (10m)

General Observations

His Eminence Cardinal Peter Kodwo Appiah Turkson (20m)

END OF THE DELIBERATIONS OF THE XXXI INTERNATIONAL CONFERENCE

11.30               Audience with the Holy Father Francis

………………………………..

                                                             Information

Conference Secretariat

Via della Conciliazione, 3 – 00193 Rome, Italy

Telephone: (06) 69883138

Fax: (06) 69883139

E-mail: opersanit@hlthwork.va

Beginning from November 10, 2016, the Secretariat will move to the Synod Hall, Vatican City. Entrance from Piazza del Sant’Uffizio, Left Colonnade of St. Peter’s Square.

The registration fee is euro 150.00, which entitles you to receive the special issue of the journal Dolentium Hominum containing the proceedings of the Conference, and the break tea or coffee.

There will be a lunch buffet on Thursday and Friday (1 pm) payable during the Conference.

All those who wish to participate in the International Conference must send in the completed registration form to the Pontifical Council for Health Care Workers, 00120 Vatican City, not later than October 26, 2016,

The registration fee can be paid through a bank transfer to:

Pontificio Consiglio per gli Operatori Sanitari

Bank: CREDITO VALTELLINESE

IBAN: IT  26 T   05216   03229 000 000 011724

BIC/SWIFT:  BPCV IT 2S

Outside Italy, by way of an international check made out to the Pontifical Council for Health Pastoral Care.

There will be simultaneous translation into English, Spanish, French, and Italian.

For admission to the Synod Hall, participants will have to present an ID badge, which can be collected from the Office of the Pontifical Council from Monday, November 7 to Wednesday, November 9 (from 9.00 a.m. to 6.00 pm.), then on Thursday, November 10 the Secretariat will be transferred to the New Synod Hall.